We finally did IVIG because despite the gains and good periods of time, we always had setbacks and backsliding. His separation anxiety is still so debilitating, leaving him with someone other than Chris or I is a major trauma (for all involved). We can’t figure out how we were able to go to Paris a couple of months ago as just going to the store without him is now major trauma. Our hope is that this treatment will help him take back his personality and childhood.
Last week we had a major, public tantrum (I may post a description about that… still debating). But overall he seems back to the baseline of where he was before IVIG, maybe a little better. We’re getting him to sleep a little earlier. Although, bedtime drama continues-we think it’s the separation. And I took him for a pizza lunch recently where he ate without washing his hands or using hand sanitizer. I know, weird for a family terrified about germs, but HUGE for someone who had anorexia from OCD earlier this year! I swear, he’d just washed them before we got there anyway. And he wore sweat pants… epic in our house. Only. Ever. Wears. Jeans. So we think these may be little signs of progress.
It’s also been nice to have his sister home for a day off school recently and now some snow days. They play and play (even giving mama time to blog). Often, I think she is the best medicine. After the months of mistreatment from him during the worst PANDAS anxiety and OCD, it melts my heart daily to see her have her big brother back and him able to enjoy their special friendship.
So, we are bracing ourselves for a possible rough patch now that we’re 2 weeks in and then we’ll continue eagerly hoping for more healing!
*To learn more about IVIG, click HERE.