We are so OVER winter. We had enough Spring a couple of weekends ago for the kids and I to plant the window boxes, then this happened.
And I found these peeking up in our dreary yard.
It’s been a long 4 weeks since I posted about our son’s PANDAS diagnosis (click here if you think I’m talking about black and white bears). It’s been a bit like Spring–the sun peaks out for a day or two, only to be buried in clouds the next and we weren’t seeing anything that indicated better days were on the way.
But we keep going… seeing doctors, adjusting meds, starting therapy, learning about the brain, and just surviving each day however we can.
Last week was crushing. After 5 weeks on antibiotics it was our worst week yet. We switched meds again and this week we’ve had 5 good days in a row! Which is a first in this journey and I hope the beginning of a fresh start. I’ve decided to share a bit more on the blog about PANDAS. I’ve been surprised to hear of many cases and there are terrible stories of families that struggle for a diagnosis and treatment due to lack of awareness. If I had heard of PANDAS or our doctor had known more my child would have been diagnosed and begun treatment days earlier. That first week he was disappearing before my eyes each day. Maybe those days wouldn’t have mattered in the long run. But if I can save one family that experience, I’d like to know I did what I could. No, this won’t be a PANDAS blog, but I will share our story and experiences. Please feel free to share with every doctor, teacher, and parent, you know.
I wish you all a beautiful spring and a fresh start wherever you need it!